https://www.nytimes.com/2023/02/07/magazine/dystonia-diagnosis.html?unlocked_article_code=1.8U0.lqLT.qEI1mDBHHaBs

That's an article I read last year. I'm not saying this is what you have. Just to keep in mind that the doctors need to keep an open mind. Dystonia is what I had/have but it affected a different part of my body. Apparently it can strike anywhere. It's not actually a disease itself. it's more of a name for symptoms that can be caused by several things. I didn't have pain but the little girl in the article did