I have drug-resistant idiopathic truncal dystonia. I resorted to DBS surgery in 2019. If you're interested in reading about my experience, I wrote about it here and https://medium.com/know-thyself-heal-thyself/my-personal-experience-with-idiopathic-truncal-dystonia-dd10f0a13a25 have updated the story a few times via epilogues.

PS: project you report on is cool